I need friendly support with my disorder

:angel:
I have Hughes Syndrome. For those of you who don't know, Hughes is a immunity disorder characterized by recurrent miscarriages, and severe blood clots. I've had five miscarriages. Please don't judge me for this, a lot of people do but they don't understand going through it is hard enough to deal with, input isn't necessary. That's not what I'm here for. :talk2hand

I get sick, very easily. Migraines were hell growing up, they slow down in your twenties, but they peak back up through your thirties and fourties. Sucks. Hughes has also been known to cause 1 in 5 strokes in people under 45. Same with heartattacks.. It also causes major, major memory loss. And little flashy lights and zig zags.. the main thing is, it's annoying!

I'm looking for a friend to go on a very.. very strict diet with me. (Too much to ask for huh?) It's the Japanese Diet.
The life expectancy is 10-15 years longer, and the cancer rate is way lower than Americans. (I've already been treated for precancerous cells in my cervix.) I'm looking for a brighter, healthier new life.. and a positive start for my new year.. It's a lot of kimchi and miso soup. . . and a lot of seaweed apparently.. mainly fish..? Cod? At the store I was looking at anyway.. I'm not used to this, and I don't think I'll like it, but I already have a two year old daughter, and I'm married.. and I need extreme change for my life, and I want a chance to live at life.. I can't even the last time that I had energy and I was excited, I've been so tired for the last five, six years, and I feel like I shouldn't even be alive.

I want to have people to exchange recipes with from the Japanese Diet.. (Favorite brand of green tea?) I want to have some sort of support, and know that I'm not alone. I would love to have people that have an illness, or something, to join me, and try to renew our life.. I know there's more to it.. I just want to find out what it is.
~pixie~

 

Hi Pixie ~ I'd say be careful about eating tooooo much fish, and be very mindful about which ocean it's caught in, because some fish in certain parts of the ocean contain a lot of mercury. Also, don't get farm-raised, because that fish can sometimes contain even more harmful chemicals than ocean-caught. Be careful about eating too much unfermented soy as well (tofu, etc.) because too much of it can be difficult to digest, and is high in phytoestrogens, which some emerging research shows can actually mimic animal estrogens in your body if you eat too much. Fermented soy products, however (tempeh, miso, tamari and shoyu soy sauces) are usually safe to eat more of, and can be a good source of protein, but the Japanese eat way less soy than we are led to believe...my sister teaches English in Japan, and she was surprised to learn that they eat way less than she thought (she's a picky eater who doesn't like tofu..hehe). Either way, the right idea is probably to increase your fruit and vegetable intake, eat whole grains (you'll often see white rice being eaten, but brown rice is less processed and more nutritious), and eat very lean sources of proteins that are rich in omega fatty acids. That seems to be how most Asian cultures eat, actually. As for a green tea, try to go for something fair-trade, the reason being that you'll feel better consuming a product that was harvested by people getting paid a fair wage...I think when people are well-compensated for their work, much more love and care goes into the product. Tea is one of those things you want to enjoy and savor slowly Watch your sodium intake. Also, make sure you are nutritionally supported, which means you are getting all the nutrients you need from the food you eat.

I wish the best for you and hope that a changed diet will help to improve your condition. An Asian diet is usually pretty healthy (our Americanized versions of their dishes are usually kinda greasy, and a far cry from the real thing), however, you can vary your diet if you get tired of it. I think sticking to the fundamental rules of fresh, whole foods and very little processed foods will be a great start for you. If you can afford it, try going for organic produce instead of conventional to lessen the chance of being exposed to the nasty pesticides and junk.

Another thing...what sort of exercise do you do? It doesn't have to be strenuous or hard, but bringing exercise into your lifestyle can help alleviate most illnesses enough that most people feel a difference. It can be as simple as taking a walk every day, but most adults need to be active for at least 30 minutes a day, 60 minutes is ideal. If you haven't exercised in a long time, you should take small steps towards building your strength and endurance...for instance, start by taking just a 15 minute walk around your block every day. It takes 3 weeks to build a habit. Once you've made it a habit, increase your walking time...do this every 2 weeks until you're up to an hour long walk. If the weather is bad, find an open, public, indoor place to walk around inside. I have heard of mall-walking, but I hate malls, so I go to the library...the one here is big enough, and I just quietly walk around all the shelves on the outer edge of the building...careful of course not to disturb anyone or get in anyone's way...

Anyway...that's my input. I hope you can find good health this year! best wishes to you and your family!

 

Poor thing, so sorry.
Well, my life experience shows, it is VERY important what we eat. Though I wouldn't limit my diet to only Japanese kind of food. Did you notice all japanese older than 38 are short? But their teenagers are normal hight? Well my Japanese friend told it was because traditional Japanese food is lacking some important ingridients. Now, that they eat more european food, their height has come to normal.
On the other hand, you need not worry that you wouldn't like the food. It is delicious and kind of cool. But when I had to change my diet, I was constantly telling myself: "This food means life and health for you; your body will like it. Why shouldn't you like it as well?" I mean, this was my mental attitude. Very soon I noticed, that "bad" kinda foods didn't even taste "good" to me any more! Really, your body WILL like good food, and you will learn to love it, too.
I can't tell my favourite kind of green tea, for I change it often. But for last 6 years I've been drinking ONLY green tee. No Cola, or Pepsi or Sprite or any of this synthetic kinda sirrup stuff.
And physical exercise is really the best in fighting all the illnesses (along with medication and diet).
Back to the diet: I find it a very good thing to have a diet. I've got used to the food I eat and my body feels very good from it. If you keep your determination and follow your diet and see the results -- then you'll feel happy.
PS: is olive oil forbiden for your desease? It gives delicious taste to vegetable dishes and is 101% healthy.
As far as healthy diets go, I am your friend.

 

Haha, I'm 4'11 being short doesn't bother me The truth is back in the old days when it came into natural foods, we didn't have certain growth hormones in the cows, and women didn't start developing until very late in their teens, I was raised without any hormones at all.. so I was very late bloomer, until I moved out starting eating crappy foods.

I do some pilates every now and then, and a lot of yoga. It's a little hard for me either way.. I've been doing a little research and I have considered "The Makers Diet". Jordan Rubin, the dude who wrote the book, left his natural ways and got an incurable disease *the same as me!*, then he started the makers diet, and from what I heard, he pretty much healed himself...

www.makersdiet.com You can go there and find out what he eats

 

So what, the cows have improved? They talk so much about teenage sex and pregnancy these days, it lools like the problem of late female development doesn't exist any more, right?

 

no, the cows have not improved. What she was trying to say is that animals raised for meat in mainstream factory farms are fed an abundance of hormones to make them grow faster, thus they get bigger faster and have a shorter lifespan, but this is having an effect on the growth of children who eat this meat. Late female development isn't really a "problem", but early female development can be.

 

Oh I see the point now. Not so bright, sorry, I am only a male. Well in my country they don't talk too much about what hormones prevail in the meet; but I suspect that surrounding people's attitudes contribute a lot to the development of their young ones. Why, all the media and movies and chats and what not -- all go crazy about everything related to sex. Kinda mania. Not surprising, this turnes the minds and bodies of the young ones in the same direction, so they become "sex-conscious" quite early.

But I'm sorry! The thread was about healthy food. I don't eat much meat anyway -- just never felt it to be the best thing to eat.

 

THE COWS HAVE IMPROVED?!
LMFAO
ooooooooooooooommggg
that really cheered me up.
Thank You Sea of Grass for knowing what i was talking about.

Hahahhahahaha.. I cant' stop laughing. Kids become sex-concious early because that's ALL the media can think of, sex sells so overdose on it.

The problem with that is you have 11 year old kids having sex, because it's the "in" thing. Just like in my old town you have 12 years buying weed off dumbasses. As adults we're supposed to be the EXAMPLES... not supporting it. Just because their developing early through the body and hormones doesn't mean their ready.

It's not REALLY "old enough to bleed, old enough to breed". When we have eleven year old girls starting their periods, and still going out to play. They ARE NOT old enough to be mothers.
The media has screwed with childrens minds, think about it.
NAMBLA.
That is ALL im going to say.

 

AFAIK, what they really need at that age when they start "bleeding", is more parental attention and love and being together. Being taught more about what it is to be a woman. Then they WON'T feel they need sex! For, really, sex is NOT what they need at that age. They need love and care and some strong man to lean against, to talk to. Someone who'd be ready to put up with the rises and falls of their emotions, who would be ready and patient enough to help them through that period. Who'd give them guidance and protection, isn't this true? Without having something from them in return.
Here is a very interesting research on that.
Unfortunately, such families and such fathers are becoming very rare, so teenage sex is a poor substitute.

To continue the theme with the hormones in the cows' meet: how does that effect the boys? Or can you show me where to find it? Please ! I just have never read about this particular problem, you know.

 

OK this is going waaaaaaaaaay off topic, but I want to say this to aguest.

I don't know that what the guy you linked to suggests is the absolute answer. I can dig the part about adolescents spending more quality time with the parents and the parents being more approachable so the kids don't feel afraid to turn to them when they're in need, but if a child that age is fiercely independent, those parents have to let that kid have that, with reasonable boundaries and rules of course. I think my folks did a decent job with me. I was allowed to date, but there were usually adults around in most situations, since I hung out mainly at friends' houses, and while the temptation to try stuff was great (sorry, but despite my good parental support, I still had the desire for sex, dude), but I didn't really get the chance, and ultimately usually came to the conclusion that I'd rather wait until another time in my life. I don't know, I'm rambling a bit off topic, but I'm just not 100% into what that guy has to say, nor do I think his research is all that scientific. What kind of studies did he do? The link you showed us is a link to a self-promoting website to sell his books. Other google results call him an "author and social philosopher" - I'm not saying that he has no merit to say what he says, but I'm not going to hang on his every word like it's some kind of gospel.

 

While this thread has displayed some interesting discussion, it is no longer serving the purpose that the OP intended it for. Please everyone, try to stay on topic (support for FinnishButterfly).

 

OK, that's my fault entirely.
Sorry!

Well I can tell you briefly in a PM, if you really wanna know.

I have just read about the growth hormones in the cows; seems to be a real bad problem. Really, it might be worth it switching to some Japnese kinda diet with the situation being so bad! Or change from beef to chicken, maybe.

I buy chicken breasts, cut them off bones and put the peaces into soy souce, where it can stay for really long time. I mean, even more than one week! Just in case you forgot to cook them this evening, which happens to me all the time. My Korean friend told me of this conserving effect of soy souce on meat, fish and other stuff.

 

Or buy meat that's raised on a small family farm with no hormones or antibiotics...buy local!

 

hi hunny! i have MTHFR which is a gene disorder, they test y7ou for it along with hughes after having recurrent miscarriage.
i have had 2 miscarriages and wanted to know why and thats when i found i have Homozygenous MTHFR.
they thought i had hughes and when they tested it came up negative, so MTHFR it is.
I am always here for a talk if you need.
I did so much research i know lots about this stuff and my sis is in the medical profession
many hugs and prayers to u hunny!