HELP! Chronic Fatigue Syndrome

Please help if you can!

At age 30, 26 years ago, my health completely crashed in just a matter of weeks. Within a few months it was determined that I had [CFS] Chronic Fatigue Syndrome, [EI] Environmental Illness, [MCS] Multiple Chemical Sensitities, Allergic Cascade, Depressed Immune System, Yuppie Flu, or whatever name you choose to call it by! In short, I had become HIGHLY allergic to EVERYTHING that God, or Mankind, has made! Since then my life has been HELL! I have been unable to work and support myself. I have been cut off from the everyday world that the average person lives in. I live an isolated, confined, limited, and destitute, existance. Not participating in life at all. Just sitting on the bench all alone as the clock ticks down, watching everybody else play the game.

The best I can describe it is, it's like having a case of the flu that is bad enough to make you stay home from work, school, parties, dancing, you name it -- and -- it NEVER GOES AWAY!

I have spent thousands on -- dozens of doctors -- dozens of cures, remmedies, herbs, therapies, programs, suppliments, injections, etc. And, read book after book, by those who claim to have had it too, and found a way to cure themselves.

WITHOUT ANY REAL RESULTS!! Other than to spend myself into permanent poverty, living on government assistence.

Yet, I still seek a way out. My life isn't over yet, and I don't want to spend what's left still on the sidelines, just waiting for the final gun.

So, if you feel you have any advice, or info to offer me that you think might help in any way, please let me know. I'd really appreciate it.

Thanks so much.

 

You may want to check this out - http://gocheck.jebcure108.hop.clickbank.net/

 

Thanks Avacado Noni. I appreciate your input. I've glanced at the website, it looks interesting. I'll look into this for sure.

 

Hey, what herbs or supplements have you actually tried? Do you think you could make a list of everything you have tried?

 

The list is ponderous! I've been at this for 26 years. In trueth, I really can't recall EVERYTHING that I've tried. The best things have made only minor improvments at best. I could make a list of it all, but at the moment, just the thought of it is overwhelming.
Though, perhaps I will later on, just to make sure I leave no stone unturned. I thank you for your interest and input. I got into this - there must be some way out! Just out of curiosity, do you know anyone personally who got results from the website you directed me to, or it just a site you are aware of? Personal results are always encouraging. Thanks!

 

Okay Avacado Noni, [if your still intereseted and listening] here's the list as best as I can remember [I know I'm leaving things out]. I will also include therapies. Somethings on the Discontinued lists have been stopped just because I can't financially afford to indefinitely sustain all this. And, more things are about to be cut.

THERAPIES CURRENTLY USED:

Netty Pot Sinus Rinse w/ salt water [ sometimes a drop or 2 of hydrogenperoxide] but chronic viral, fungal, and bacterial infections persist
THEREAPIES DISCONTINUED:

Intredermal provocative testing: w/ clinical ecologists - including 2, 1 month long stays at a special intensive are unit for this , that they once had in Dallas, TX.

Hydrogenperoxide oxygenation therapy

auto urine therapy: oral, and injections [yuk - the things you do when desperate]

Accupuncture

HERBS CURRENTLY USED: Peppermint leaf [tea] - ginger root [tea] - Kelp Caps [powder] - Prescription Chinese Herbal Formula [content unknown, prescription is changed at each 2 week visit, and practioner has exclusive importation rights of these herbs from china, most unattainable any where else in US]

HERBS DISCONTINUED: echanacia - astragulus - pau d'arco - Cayenne Caps - Nettle leaf Caps

SUPPLIMENTS CURRENTLY USED: Vit C - E 400 IU - Quercitine - Q-10 - Dayly Multi-vits - Dayly Multi-Mins - L-Glutamine 500 mg - Panothenic Acid 500mg - NAC 600mg - Grapefruit Seed Extract 125mg - Lecithin 1.36g - Mega Bromelain Caps - Betaine HCI Caps - Waiora Natural Celluar Defense [Zeolite] Drops - Flax Seed Oil

SUPPLIMENTS DISCONTINUED: Vit B-50 Complex - Olivirex - Biocidin - DHEA 5 - SAMe 200 - Zinc Lozenges - Amino Acids - Magnesium Caps - Ness Enzyme Formula #21 - Ness Enzyme Formula #301?, or #304?, or #401? - Cocanut Oil

 

Wow that's quite a regimen your on!!! I have a friend who is a zeolite distributor, that's very interesting.

How do you mean you have chronic infections, regardless of hydrogen peroxide? Is it food grade peroxide? I have a hard time seeing that, especially with some of the herbs you mentioned like pau d arco and cayenne.

I guess my next question would be what are you eating or consuming that might be draining your vital energy? Do you consume a lot of white sugar, sweet starchy foods, white flour or caffeine? What about processed foods in general?

Have you ever tryed raw foods? How about consuming fresh made vegetable juice? What about colon hydrotherapy or other forms of oxygen therapy?

 

Yes, it is a MADDENING and DISHEARTENING situation.

Yes the sinus infections are there -- always there -- like they are bullet proof. But then so is everything else about this too.
Like I'm supposed to have this and there is no undoing it.

The hydrogenperoxide I use in the netty pot is plain old supermarket stuff. But when I did the oxygenation therapy it was the industrial toxic hazard stuff.

What am I eating NOTHING!!!!! I lost tollerance to ALL FOODS years ago.
I survive on spinach, turnip greens, carrots, peas, [all frozen] and 1/4 lb. of chicken or beef dayly. EVERYTHING ELSE TRASHES ME SO BAD YOU CAN'T GET ME TO EAT IT! And these bother me too. These are just the foods that trash me the least.
[No, it isn't organic, can't get it here, and I couldn't afford it if I could.] And, I live in constant fear that I will lose these foods too at any minute. Numerous times I have lost all foods and started starving, and more than once was sure it was the end -- obviously I am not over weight. Once I went below 108 lbs., I'm 5'8". That's when I stopped weighing myself. Scared me too much to know. Who knows how low I actually went. Didn't start weighing again until I could see I had gained some -- months later.
I don't digest raw foods very well, dosen't seem like much of an option.
I keep my self isolated, if I catch ANYTHING, it goes WAY harder on me than anyone else. No matter what it is -- it lasts for MONTHS, and it casuses me to lose ALL of my foods until I get over it.The whole thing is a mess. I hate it all, but would settle for just getting my foods back PERMANENTLY, without any problems. That is the worst!

Haven't tried the other therapies you mentioned, I'd probably have trouble affording them. Catch 22, it takes $$$ to get well - you have to be well to earn $$$. Though I would like to know more about them. Who knows, maybe the Universe might help me find some way to make it happen.

Oh, I should mention I DID have all the mercury in mouth removed by Dr, Kennedy, the leader and spokes person of the anti-mercury in dentistry movent in the US. There is no one better! And, it made me far worse! At that point I just sort of crumbled. Best efforts set me back?!!

Intellectually I know the possibility of healing is there. But, emotionally, after 26 years, I DON'T THINK SO! THIS -- IS IT! Sometimes I feel stupid for still making an effort. But I do -- Taurus stubborness. Remember The Alamo!, Bonazi!, and Bombs away!!

I gave up on doctors years ago. I get 3 things from them - 1, your lyeing [to get drugs]- 2, your insane [nothing like this can really happen]- 3, I believe you but can't help you [tough luck].

Alternative practioners tend to believe me, but so far have been of limited help. All everything I'm doing now dose is take the edge off of it some. And, there a numerous other unpleasent and unbelievable symptoms I'm not even mentioning.

Any way, thanks for your interest and input. Who knows when I might stumble across an answer. Could be tomarrow! Thanks.

 

Yerba Mate

 

What is your diet like? Are you eating healthy? Do you eat a balanced diet?

Chronic Fatigue means your body lacks vital nutrients like the B complex vitamins and other.

Try food as your medicine instead of all those herbs, supplements, and junk. If you are going to take supplements than I suggest whole-food supplements like Spirulina they are a lot better for you than isolated supplements.

You are what you eat!

Spirulina:
http://en.wikipedia.org/wiki/Spirulina_(dietary_supplement)

Also read: A lot good articles on health.
http://www.newstarget.com/index.html

 

What am I eating -- unfortunately, NOTHING!!!!! I lost tollerance to ALL FOODS years ago.
I survive on spinach, turnip greens, carrots, peas, [all frozen] and 1/4 lb. of chicken or beef dayly. EVERYTHING ELSE TRASHES ME SO BAD YOU CAN'T GET ME TO EAT IT! And these bother me too. These are just the foods that trash me the least.

Food as medicine IS a great idea -- if you can tolerate food. Unfortunately I can't. [please see post #8 in this thread] That is one of the worst parts of this situation.

Food intolerance is WHY I depend on herbs and suppliments. There IS no other way I know of getting the nutrients I need without foods. And, this all came upon me back when I was eating normally, and rather healthfully at that. As best as can be determined, this is allergy and wacked out immune system based. Not being able to eat is a contributing catch 22.

Thanks so much for the spirulina suggestion, I'll check it out. I do appreciate your input. Every little bit of info has the potential to help.

 

Cut out hard to digest foods like:
Animal products
Dairy
Meat
Grains
Legumes(peas, beans, lentils)
Nuts and seeds unless you sprout them.
Root vegetables

Have you tired Juice Fasting?
http://www.freedomyou.com/fasting_book/juice%20fasting.htm

Since you cannot digest raw foods, then juice them. If you have a juicer or blender.

Have you tired sprouts?
http://en.wikipedia.org/wiki/Sprouting

Fresh fruits and leafy greens are easy to digest for most people, if you suffer from digestion problems.

Let us know how these suggestions help.

 

The foods I listed before are the ONLY foods I am able to tolerate. I'm too ALLERGIC to ALL other foods to eat them. And, saddly enough, I litterally, and actually, mean ALL. I haven't had ANY grains, dairy, nuts, or legumes, for years. I haven't eaten ANYTHING other these few foods I've listed for so long it seems like a life time already. I do find raw foods hard to digest, but not impossible -- I'm not doing without because of digestion, I'm doing without, because I'm ALLERGIC to eveything.

Juicing would be a great idea if I wasn't allergic to it all. Unfortunately I could only juice what I'm already restricted to. The same with sprouts. It makes no difference if something is cooked, raw, juiced, or sprouted -- if your allergic to it , unfortunately, your still allergic to it.

In other words ALL foods have become poison to me. Even what I AM eating. I eat these few because they are the least poisonuos for me. And, I can get by with out being completely trashed by them. But they do bother me, after each and every meal. Sometimes a great deal, other times hardly at all. It kinda depends on how well I'm doing in general at the moment.

I know, it's a WAY OUT OF THE BOX situation, and it defies standard every day, apply to everyone, proceedures and logic. And, the average person just doesn't get. I wouldn't either, if it hadn't happened to me. Also, discouragingly enough for me, you can include most doctors in the don't get catagory as well.

And have to tell you that yes, I have tried juicing and sprouts about 20 years ago, when my situation wasn't as bad and I still had a much larger food list to chose from. Unfortunately, all I did was lose more weight.

I always cringe when I tell good hearted people that the suggestions they are offering me in good faith, are pathes I have already gone down, without the desired results.

All too often, it comes across to them as out of hand arrogant rejection, and/or, unco-operativeness. Also, it seems to stress and frustrate people who truelly want to help. It leaves many of them in this uncomfortable place of feeling helpless. And, at times, some of them get this kind of displaced rage about it, that they turn on me.

To be honest, after 26 years of this, there are few stones I have left unturned. Except for some of the more costly ones, which I have never had the resources to try.

But let me say, I DO have my better times, and I DO make the effort to get ALL that I can out of life, considering the limits and restrictions I have to deal with.

That being said, I am FAR from content with the situation. And, continue to do what ever I can to change it for the better.

And I DO thank you for your interest, concern, and suggestions. And, welcome any and all offered.

When I posted this thread, I did it hesitantly. I knew few would fully understand, and perhaps some would think that I enjoy playing sick, or am seeking sympathy. But, I did it any way, because this was a stone I had as yet left unturned. And, if you don't ASK for an answer, chances are you won't get one.

So, here I am. Looking exposed, awkward, and possibly foolish, and infantile. But, what is the price of a magic bullet?! And, how and where do you find one?

Thanks for your input.

 

Fasting really does seem to raise vitality and energy...Can you do coconut water??? Like the water from young coconuts you get in Asian Markets?

What kind of mattress do you sleep on? Most are required to be treated with formaldehyde and other flame retardant chemicals that volatilize into the air that we breathe directly all night. Same with carpets. This can congest the liver big time and make us allergic to completley normal and natural foods. I would stick with the zeolites for all of this until you can change the living situation.

Also what do you clean your house with? What kind of shampoo do you use? Some of these can contain extremely carcinogenic and nerve toxic ingredients that don't contribute to vital and energetic health.

Wild food is super potent and healing in my opinion. Fresh dandelion flowers, chickweed, whatever grows around you is always extremely good for you and very oxygenating and vital. Wild food is the most vital food next to sprouts imo.

Have you heard of Dr. William Hitt?

Sometimes our physical condition is a reflection of a deeper spiritual issue...and I would actually tend to think that is always the case. No one gets sick without it happening for a reason... Working on your belief system, and starting to believe that there is absolutley a cure to anything if your 100% committed to finding a solution.

 

You used the word "trashes me" in your previous post which makes me think of the endocrine system and being hormonally exhausted...Sorry if I asked but did you ever drink a lot of coffee in your life???

I would never ever touch conventional food EVER. Everything 100% certified organic. NO matter what it costs. I would go into debt before I would eat conventional meat. No amount of money can really justify that in this kind of situation.

Did you say you've tried taking bovine adrenal cortexes or something similar to that??

Have you ever tried Maca root powder before?

I think juicing whatever your eating is an incredible idea and you should try it regardless..and get fresh produce, not frozen.

 

I agree completley. I had moderate depression and severe fatigue last year and fasted for a week and then ate raw for two months-all of my mental and physical problems diminished. At first it got worse, but then all of a sudden I felt great.

I now eat 'normally' again, but feel awful if my diet isn't at least 50 percent raw.
If you have stomach ailments (I had themt oo) coconut water, mangoes, bananas and non-acidic tropical fruit are a good choice and high in calories so you won't get super hungry.
I need to fast soon, my skin is looking awful and I am moody.
PS-AvacadoNoni helped me a lot during the period I was eating raw and gives awesome advice.

 

Thanks for your advice Bella Desordre, and especially Avacado Noni. Noni, sorry I haven't responded to your last reply sooner. Been preoccupied with dayly hum drum stuff that demanded my attention. At the moment it is late and I'm pretty much done in. I will get back to you soon about the suggestions and questions in your last reply. Please don't take my delaying as disinterest or dicouragement -- this is the #1 issue in my life. There's just times when I'm too foggy headed to deal well with serious matters -- and I want to deal WELL with this. I'll reply soon.

 

boy, this sure sounds familiar. took me years to figure out what happened to me, but what it ended up being was fluoride poisoning. fluoride suppresses thyroid function, and that's where alot of the symptoms came from. i've talked to alot of people online this has happened to.

 

Lady, thanks for this input. It is one I have never had offered to me. You don't mention, but the tone of your post suggests to me that have gotten better. Hope that's true. I do have a somewhat depressed thyroid condition, [in addition to everything else] which I deal with by taking Kelp powder caps. It does help some. Since I started doing this, I've had a bit more energy, and my depressions are not nearly as deep, dark, long, and nightmareish, as before.
My family always used fluoride tooth pastes,[I haven't now for years], and I do remember having my teeth fluoride treated/painted around age 13 [early '60s]. Also, it might well have been in the tap water we drank.
You don't mention -- what, if anything, did you do about it? If something, or some one helped you, I'd really like to know what it was. Thanks for your input, I'll look into it.

 

well, if i were to summarize in a nutshell what helps me this would be the short list:

living in a place with unfluoridated water
supplementing with natural thyroid
growing as much of my own food as possible
eating whole, fresh organic/natural food as much as possible
avoiding prepared foods as much as possible
avoiding foods that are notoriously high in fluoride
avoiding synthetic chemicals of all kinds in general

it took many years of reading and studying to learn how to reduce my fluoride exposure enough to have good quality of life. as i've gotten more informed and better at it, i've been able to gradually get back into normal life. the mcs in particular has improved immensely. there was a time i never would have been able to tolerate the jobs i have now due to exposure to chemicals such as copier and printer toners, etc. it's still no picnic at times, but i currently can live a relatively normal life.

a good site for a beginner to get started is nofluoride.com. if you just start reading and keep following links from site to site you'll be surprised what you learn. the most important thing i can tell you is, as you learn - pay close attention to what your body is telling you.