has any one got first hand expereince of this? i have just been diagnosed with it hence all the problems i have, and together with having no pc muscle at all even after doing the excersises for the past 25 years its made no difference whatsoever, also my clit is permanently dead caused by my husband and i in the early stages of the relationship dry humping, this is not fixable! what the hell can we do, any help would be gladly recieved
I'm guessing you're referring to vestibulitis, a form of vulvodynia. I have vestibulitis. I deal with it by using lydocaine ointment on my vestibule before sex. It helps a lot with the stinging. I also saw a physical therapist, who used biofeedback to help me gain more control of my PC muscles, because I was having some involuntary muscle contractions.
ive heard of the feed back thing before, how long did it take to make any imporvement? i dont have the involuntary contractions, i have no contractions at all. i try and try to contract the muscles but i cant get anything to happen.
The biofeedback would probably help you gain an awareness of the muscles and get more control over them. I noticed immediate improvement, but then I have very strong PC muscles and very good awareness of my body. It may take you longer. The PT I saw said she usually sees people about 12 times. What's probably going on with you is that you're contracting your abdominal or anal muscles instead of your PC muscles. Biofeedback would definitely help with that. BTW, dry humping does not cause the clit to go dead. The only thing that would take away all feeling in that area would be severe nerve damage. That kind of nerve damage could happen during surgery to the area or a severe accident, but never by sexual activity of any kind. If you have no feeling whatsoever in your clit, I would see a gynecologist and talk to them about reconstructive surgery.
the only feeling i have is pain, sharp glass being rubbed into it pain, or complete numbness, i have had 3 c sections, and an op on the end of my spine, but i was like this well before those ops took place. as for the sex damagging my clit, well i suppose it depends on what you would call normal dry humping doesnt it? if it was constant, pain wait until slight recovery and then repeat for months. then that surely cant be classed as normal? the amount of pain i was in made walking nearly impossible, i had to cushion my clit with sanatary towels til it had died down and then this went on for about 3 =4 months
Have you spoken to a gynecologist or a neurologist about it? I have to wonder why you would consent to such a painful and damaging activity in the first place...
over the years i did bring up the pain to a couple of doctors, but i was dismissed as they couldnt see anything wrong. as for the consenting to the activity, i thought it was totally normal as this is what i had been told it was like. in the uk it isnt so easy to get to see the gyn, we have to be refered vis the gp, this can take many months or more to get there, and as we dont see a gyn on a regular basis, i.e. like you lot in the us have yearly visits, its so difficult to get taken seriously.
I know how you feel - it took me three years just to get a doctor to believe that I had vestibulitis. They all thought it was in my head. I would advise you to see a sex therapist, in addition to continuing to try and get into a GYN. Good luck!
came back from the second visit to my gp after leaving her the chapter of the book for her to read last week, guess what? that s right she hasnt read it!! bloody good job i aint going to die from this isnt it?, asked her about the biofeedback stuff and seeing as its done by the one and only sex therapist that we saw last year, the one that takes great delight in abusing her patients!! i have a hard time to find another one that i could go and see. so now im waiting for the phone call from the doctor when shes read the info i left, and hopefully she will give me some proper medicine instead of the lindocaine which does help everything go numb but it isnt getting rid of the symptoms though just the end result.
