For those of you that know me, know why im doing this.. Please sign this so it can at least be heard in parliament.. Thankyou! Also if you need any info about this.. Morrow! Petition: Make Orkambi available on the NHS for people with Cystic Fibrosis
But how do I know that they won't confirm my digital signature by looking/tracking my IP address or some wazoo shit like that?
Had to research orkambi and yeah, signed. Going by the figures it has to be debated. Excellent news for those affected with CF
"We've added your signature to the petition:" It's always better to go over the target because we (UK), know the lengths that this government will go to escape obligations (One trust this is also on FB/Twit...?) "Keep the Faith"
To all those who supported me in this... a big thankyou from me and mine... It worked! We got it! Cystic fibrosis drugs breakthrough: Hopes high for NI patients NHS England agrees price for 'unaffordable' cystic fibrosis drug Cystic fibrosis drug to be free on NHS in 30 days after US firm bows to pressure
Sorry I didn't see it Morrrow I always try to support just cause as/when required - It does go to show that so activism does work - well done
Good news. It is such a pity that greedy pharmaceutical continue to need such measures before they agree a realistic price. Cardio-thoracic devices are among the worst affected, with patent devices used in TAVI procedures that have an actual production cost of less than £50 priced at £17,000 each. One ELVAD used to delay surgery for 6 weeks costs £50,000. Sadly, if these companies are allowed to charge such prices following negotiations. I dread to think what would happen if they were offered a blank cheque.
