Need Some Input

Discussion in 'Women's Forum' started by SunshineSummerlott, Aug 29, 2015.

  1. SunshineSummerlott

    SunshineSummerlott Members

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    I don't have the time to sit and type everything out so I will explain in further detail next time I can log on. But long story short, I have chronic PID that I was told will probably not go away and I have high-grade squamous intraepithial lesions(CIN2) on wre cervix that showed up on a pap and was cnfirmed with a biopsy. The last doctor I saw on Thursday told me the PID would probably not go away and she won't do anything about my cervix because she wants to "wait and see". I was given Ibprofen800 before, but since I told her it wasn't helping at all she gave me a stronger anti-inflammatory. She also wants me to try this birth control pill. I don't really like any of this, but have also been to other doctors. My cervix hurts too, not just the PID.These lesions left untreated can and will turn into cervical cancer. Te birth control she gave me can and has been shown to increase your chances of breast or cervical cancer. My Nana had breast cancer and I already have pre-cancerous cells...
    basically I'm asking for anyone that has dealt with this or a similar issue for their experience. I have done my research on these things, but it is always helpful to have an extra set of eyes so if any information anyone is willing to look up would be greatly appreciated. Advice, suggestions, good vibes...I could really use anything ya'll can give me as long as its not judgement, smartass-ness, or negativity.

    My gut tells me the birth control won't help and will more than likely fuck me up more later on down the road and my intuition is pretty fine tuned, but I'm not a doctor you know?

    Like I said, I don't have enough time to type out all the specifics, but I will. Thank you so much for reading, sending good vibes and love your way!:)
     
  2. Blu3sLady

    Blu3sLady Members

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    Hello, Sunshine.

    Sorry to read about your troubles. The only part I can really speak to would be the anti-inflammatory aspect. It's something I deal with for the occasional bouts of RA. I use turmeric, which seems to help and is the spice prevalent in a lot of Indian dishes. You can get it in capsule form and take it like a vitamin or you can sprinkle the spice directly on food... or you can grow your own (my preference). There are some studies about the anti-cancer properties of turmeric, now too.. so this spice is a win/win.

    What also helps keep inflammation down is to get off all red meat that isn't pasture fed and even then, you won't know what hormones or antibiotics the animal consumed... but pasture fed is better than feed lot if you eat beef. Same thing about drinking milk. Unless you can be sure how the animal is raised.. don't drink it.

    Keep alcohol consumption to a minimum during those times when the inflammatory pain is bothersome. Alcohol puts pressure on your liver. As does any anti-inflammatory meds that they prescribe.

    I would trust my instinct about the birth control pills. So often, they give women a 'quick fix' without looking into long-term. It is YOUR body so you have to ultimately decide about ingesting powerful hormones.

    I know you are worried about your Nana's history... but while keeping that in mind, don't worry too much. Your mother or sister would be considered a first degree relative if they had shown with cancer, but your Nana is not. The last time I checked, which has been a decade, this was the criteria... so look into the current marker expectations.

    Bless your heart. You seem intelligent and fully capable of setting your own course by being an informed patient. Trust yourself.
     
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  3. Vanilla Gorilla

    Vanilla Gorilla Go Ape

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    That doesnt mean anything, as they will often just work with probabilities, especially with two opposing risk factors. You seem to already understand this

    Nowadays its a lot easier to get on the web, research every detail about a condition and treatment


    Dont trust any one doctor, you have to watch out for that i know better than you becuase I suffered through medical school attitude...especially if they do appear friendly and empathetic
     
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  4. Pieceofmyheart

    Pieceofmyheart Grumpy old bitch HipForums Supporter

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    I don't believe BC pills at this point increase risk for breast or uterine cancer. I have read many studies that counter that. I don't understand why the Dr didn't do a D&C on those lesions. Inflammation is the cause of most disease.. read up on how to lesson inflammation in your body.
     
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  5. SunshineSummerlott

    SunshineSummerlott Members

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    Thank you guys so much for your suggestions and kind words so far. I now have time to start from the begining so here it goes I guess...Forgive me if anything seems TMI to any of you. I just want to give anyone that is interested in helping the best info and understanding of what is going on I can.

    I was on Depo-Provera birth control shot for four years, I stopped in 2011. I was tired of the side effects, couldn't afford it, and had just moved out of my parent's so I actually had a choice in the matter for once. I didn't get my period back for about a year and after that, I was in pain most of the time. I can't say I blame Depo for any of this, just trying to figure out if it has had anything to do with any of this in a negative or positive way. My periods were completely different after Depo. Before they were so light I could use those little Carefree pantyliners for the week. I had little to no cramping, none of the typical complaints. After depo, they were irregular for a while but have slowly become more regular and only switching around on me here and there. Considering I'm only like 96 pounds or so, that isn't very concerning...just slightly annoying. Anyway, my periods have become more and more painful over the four years since I quit depo. Now I have symptoms of PMS/PMDD along with my period. My pelvic area, lower abdomin, and lower back hurt all the time. It gets worse sometimes up to two weeks before my period and up to a week after. My breasts are tender and swollen, I'm nauseated, and sometimes get fevers out of no where. I get hot flashes and chills, headaches, and am always tired. The pain in my cervix used to only happen every once in a blue moon, but now its every day. It feels like someone is trying to fuck me with a knife (excuse me for giving you that disturbing mental image). Standing feels like it takes all my energy and I can't sit straight up, lay on either of my sides, or my stomach for more than a few minutes without causing me pain. I had to stop using tampons like a year ago because I couldn't even get out of my tiny ass bathroom without having to take it out because it hurt so bad...plus I was tired of all the trash it created and money it wasted. Oh, and the worst part besides constant pain and being tired? Sex is painful, so ainful that now my husband and I can't even have sex and haven't since June 12th. I'm 22, he's 26, we're married, and we used to do it every day. Now he can't even put a finger inside me. The thought of sex just scares me because it hurts and depresses me because that's an important thing to us. My husband has a high sex drive and I used to, but I don't even get aroused anymore...even when I try for his sake.

    I got UTI'S a few times in high school, but the doctor said that since I had stopped drinking pop in fourth grade and all the sudden strated drinking a significant amount again, that was the most likely cause. I stopped drinking pop again and no more UTIs. When I was just living with my husband as a roommate in October 2012, I was seeing a guy that was a little man whore. He slept around on me and got us both Chlamydia. I had symptoms a week or so after I suspected he might be cheating on me, but I waited a little over a week before I went to a doctor because I had no insurance and thought it might just be a rough period again. I was pissed, but I got it taken care of it for both of us and kicked him to the curb after hanging out just a few more times in efforts to end thing on a decent note. My husband knew all of what was going on by the way. He is the one that took me to the doctor and took care of me through all of that, so I have to brag on him for it. After Eric and I got together he got bit by a brown recluse(for the second time in his life) and somehow he got MRSA inside the freakin' spider bite. Long story short on that, we fucked before we knew and I got MRSA on my labia/Bartholin's Gland in February of 2013. Sometime a few months later I got BV and got it taken care of the day I started feeling bad. Basically my reproductive organs have just been attacked. I've read being rape and sexually abused can make it easier for you to get infections like this so I'm sure being through that hadn't helped matters either.

    In March of 2014 I went to the ER at four-thirty in the morning because I woke up to go pee, go back in bed, and couldn't take the pain in my pelvic area and lower right portion of my abdomin. The wrote my cheif complaint was "nonspecific right flank pain". They took my blood, my urine, and did a CT scan. The Urinalysis showd moderate epithelial sells when the normal range is [none]/RARE/FEW. My urinalysis also showed "rare" bacteria and the normal range is none. Again, not a doctor...but I feel like if a young woman with a history of infection omes into the ER with pelvic, lower back, and lower abdominal pain and then has two things show up in her urine above normal range, there is probably something wrong or you should be looking into it further. Instead, I was told "we can't figure it out, it's probably just menstrual cramps" then given Norco and sent on my way. I feel like because I didn't have insurance, it wasn't and open and shut deal, and because I was a female being seen by a male doctor, I wasn't taken seriously and they just shoowed me away.

    In June of 2014 I tried going to the Community Health Improvement Center we have in town because I still didn't have insurance. They took my urine and told me they would schedule me for an ultrasound, but never did even after I called tthem on it. I couldn't afford a doctor without insurance and it was very clear no one was going to do anything real for me until I got some. So, in June of 2015 I went back to CHIC to start with, this time with insurance.They again took my urine, took my blood, did a pelvic exam/PAP, and scheduled me for an ultrasound. I was told I would get a call about my results when they came in. On July 1st I got a letter saying everything was normal. On July 10th I got a call right before they closed for the day and they told me I had a cyst on my left ovary, an abnormal PAP, and that they would call back with my next appointment. I read up on the little bit I had to go on and called back on July 13th asking for more details and I was told abnormal cells showed up on my PAP. I called again the next day and told asked them for a classification on those cells because everywhere I read said that was what they were supposed to tell me. The lady told me "we don't know that's why we are sending you to a specialist". It was only after I told them I would call every day until they scheduled my next appointment that they did anything. They finally scheduled me for July 28th to "discuss my results". I was in pain and frustrated with this so I asked for my medical records to see if there was any info.
    There was absolutely no info on my PAP smear! There was a space for it, but it was blank! By obtaining my records I also found out my cervix is deviated to the left, the ultrasound showed some cysts on my right ovary, a "dominent" cyst on my left, and a "prominent amount of free fluid in the pelvis can be seen extending towards the left ovary. From my reading I know these could have been functional cysts and they may have been no big deal, but I feel like it still should've been talked about. I was tired of CHIC, they weren't doing anything to help with the pain or even suggesting things I could try at home. I ranted about all this to my sister in-law and she suggested I see the doctor she went to for her pregnancies. She had a great experience with him and said he could probably help with the pain until I saw CHIC again at the very least. I called and they scheduled me for the next day.
    I saw him the first time on July 16th. I brought my records, he looked at them, talked to me, and did a pelvic exam. He said it might be endometriosis and told me I could either start taking Deo again(fuck no) or he could do a diagnostic laparoscopy to see for sure. I chose the laparoscopy and it was scheduled for July 27th. When I got my IV, even though I had told at least five different people just that day, including the nurse doing my IV that I was allergic to adhesive on all bandaids and medical tape, she still put medical tape on me. I had to make her take it all off, clean my arm, and find something else. The report of my surgery (excluding the specific directions of how and what exactly they did step by step) showed the following:
    "Right ovary was normal except for evidence of a corpus luteum cyst. There is sometimes dense adhesions involving the right ovary, tube to the pelvic sidewall. The tube was segmented (diverticulosis of the fallopian tube) salpingitis isthmic nodosum. Successive bites of adhesions were undertaken to free the tube and ovary from the pelvic sidewall. Bloody yellowish fluid. On the left side of the patient's pelvis is evidence of chronid PID with left tube and ovary adhesed to the pelvic sidewall. These adhesions were lysed without any complications. The left fallopian tube was again segmented (diverticulosis of the fallopian tube) salpingitis isthmic nodosum."
    Now even though I told them AGAIN right before I went to sleep, in was in my record, and I had an allergy armband, they still put fucking bandaiads on me. I woke up to the skin on my abdomin being irritated and had to make them change it. When I asked what was wrong with me they were only going to tell me I "ha an infection" until I insisted they call the doctor and make them at least give me a printout. This packet says PID should be able to at least be suspected through bimanual vaginal exams, blood and urine tests, culture or smear tests, and ultrasounds...all were done(some several times) before this surgery yet no one suspected anything? The doctor gave my Clindamycin, Ibprofen800, and Percocet. I finished the Clindamycin, but the Ibprofen did nothing at all, neither did the percocet, and it made me sick. I told the doctor these things, but he didn't do anything but write it into my record.
    Finally, I go back to CHIC on the 28th and am given a classification on the abnormal cells. The PAP showed high-grade squamous intraepithial lesions(HGSIL); moderate dysplasia. This doctor scheduled me for a colposcopy with a biopsy on August 4th. She did not even bring up the finding on my ultrasound until I asked and said nothing about the PID. They were only addressing my cervix. The biopsy showed the same thing with (CIN2) and hurt like hell. I complained about the pain I was in and told her what the other doctor put me on was not helping, but again, no help with managing my pain and again, she was only addressing my issues with my cervix. She told me my options were to wait 6 months and have another PAP and/or colposcopy with a biopsy or get it cut out with a LEEP. I told her I had been dealing with this for 4 years, it hurts, I just want it gone so she called another doctor and scheduled me to see her about a LEEP. I had to make her mention the PID to this other doctor so I could finally just get them both adressed.

    The next time my period started it was worse again, I was sick to my stomach, and my head hurt more than it ever had in my life so I went to the ER. I found out the doctor that did my surgery has a pretty sucky track record and I had already done everything else my packet had told me to do if my pain didn't improve. They wrote my cheif complaint as headache even though I told them about the surgery and my pelvic pain. They took 7 hours just to start dong anything and give me pain meds. My husband and I asked what she was giving me and she only told us about two out the the four things she gave me. I don't feel comfortable about this either considering she didn't tell us I was getting morphine and we speifically asked. The actual doctor wasn't so bad. He took it seriously, but couldn't find anything else wrong after taking my blood, my urine, and doing an ultrasound. The only thing they noticed was there was still a little fluid in my pelvis. I told him I was seeing doctors for this, but they weren't managing my pain and I couldn't take being like this. He gave me Tramadol to last until my next appointment. Besides smoking pot, this has been the only thing to really help my pain.

    Last Thursday I went to see the other doctor CHIC wanted to send me to. She only looked at the records from CHIC and did a pelvic exam. She told me the PID would probably not go away and she didn't want to do a LEEP on me because I'm young and it may effect my fertility. This kinda pissed me off because its like did you not notice all these other check marks against me being able to have a child? You don't even know the extent on the PID! I have pictures and you haven't even seen them! Not to mention my husband has had a vasectomy. She put me on Meloxicam and Necon 7/7/7, told me to come back in 2 months to tell her how it worked, and to come back in 6 months for another PAP.

    Sorry for the book, but even doing my reading and asking questions there is so much I am confused and concerned about. Plus, I don't really trust doctors so I need to know if any of this sems a little off to any of you. Thank you again so very much to anyone willing to read and respond. I appreciate the time you're taking out of your day and what you have to say.:)
     
  6. Vanilla Gorilla

    Vanilla Gorilla Go Ape

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    Salpingitis is pretty clear cut

    Gives away what you are not being truthful about

    Why the doctors are like mmmm hmmm, and send you on your way
     
  7. Aerianne

    Aerianne Lifetime Supporter Lifetime Supporter

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    I don't want to hijack the thread but I'm really interested in this. I want to buy some for OA and FMS. What would you suggest?
     
  8. Blu3sLady

    Blu3sLady Members

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    About the turmeric, Aerianne? I started out sprinkling the spice on my food but I let the 'lazies' get to me and bought capsules. I found a turmeric plant at the Farmer's Market and its roots should be ready to grind this winter. I think any of these would work about the same as the others.

    It's an inexpensive spice that's been used forever in Ayurvedic medicine.
     
  9. SunshineSummerlott

    SunshineSummerlott Members

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    What do you mean by this?
     
  10. michaelallen

    michaelallen Members

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    As you said that consuming the birth control pills are showing adverse effects on your body, you should take a second opinion from the doctor because at times birth control may not suit on the body, its better that you immediately inform your symptoms and issues with your doctor, so that she can disgnose your problem and get change your medicines, try also to use cup menstruelle during periods, so that you don't have to suffer from any skin reaction and your menstrual hygeine is also maintained.
     

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