Yes I was just diagnosed with Epilepsy the morning after I turned 27. Or at least the doctors are fairly certain I have it. I woke up Tuesday morning in the hospital after having apparently fallen from my bed at 2 am and going into a seizure. Which came first is somewhat unclear. My wife was in the bedroom and said she watched me roll over toward her then roll back and off the bed.There was a sickening crunch which was the sound of my nose breaking and my forehead splitting open and when she crawled to the edge to check I was seizing. An Ambulance, ER and nurse or two later I awoke with only foggy dreamlike memories and a doctor telling me I've got a form of sleep Epilepsy..... They put me on meds and told me I can't drive or operate heavy machinery for the next 4-6 months. Now I've lost my job and am at a loss for where to go next. This wasn't the first possible episode either. Around 3 weeks ago I awoke at 3 am feeling very disoriented and weak. I stumbled to the bathroom to vomit and saw my face in the mirror. I was drenched in blood. In horror I stumbled out to the garage where my wife was. She saw me and called the neighbor to take me to the hospital. There they determined I'd fallen from my bed and hit an axe I'd had stashed in the corner of the room. What the hell??
Like you guys need this! Get all the help you can, apply to or for everything! They can only say no! Do you have access to specialist dr, nurse? My love to you, kitty and Bear...what shit luck!
I'm looking into getting myself a family doctor. Not sure how much good it'll do though. I don't think Epilepsy is curable
Like some life long illnesses you can live and manage your illness, just get good medical advice, and do everything you can..what am I saying! You know what to do.. Just don't let it get ahead of you...it's part of your life, not who you are
I'm confused as to why it waited until 27 to manifest. No one I've known throughout my life recalls signs of it before. Not even my own parents
I believe it's not necessarily there from birth, that it can be a head injury! A friend of mine had it, it was caused by a punch to her head from her x husband, she was knocked out, that's when it started.. She was 28...now 20 years later, she is on meds, and done a year free.. She thinks stress and certain foods can set it off..but she is doing ok
Ah, that sucks, but it could be always be worse. Look at the bright side, some guys would l kill to be in your position. This is what I would do: 1. Get all the government help you can get, start looking into it now and research the hell out of it. 2. Research the best therapies to make this more manageable. 3. Accommodate your home for this condition.(bed height, etc.) 4. You can start your own business. There are tons of things you can do, one of the biggest and fastest growing are online businesses. Also, writing articles for online magazines/publishers And of course, websites like these: https://www.fiverr.com/
I'm epileptic myself. Usually it first surfaces at puberty and contracting it at 27 is a bit unusual. However, you are in luck because current research is finally providing long sought after answers for the causes and ways to treat the disease and there already exist well researched treatments. That you've only had two seizures several weeks apart is a good sign that it should be very manageable on medication. Hopefully, within five years or so they have new medications that address the root of the problem which appears to have to do with a lack of a specific hormone in the brain that prevents our neurons from over reacting too often.
I'm still hoping that they're wrong and I don't have seizures. Waiting on the E.E.G. results still. I'd hope they're pretty damn sure seeing as they slapped me with Keppra but they are doctors....
and as doctors, their only obligation is to keep you sick and to keep you paying. That's the business.
I don't know how much EEGs have improved over the years, but they used to be pretty hit and miss. I was many months before they showed anything when I first started having seizures. Sort of like phrenology where they try to read to bumps on your head.
It's frustrating because they don't know what causes it but they have about 40 medicines that you can take that will supposedly help with it. Very interesting Perfect Disorder.
My wife is looking at buying a Japanese bed. Guess they're low to the ground. Till then I'm banished to the couch
